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| Niemeijer, A.R., Depla, M., Hertogh, C., Frederiks, B., Francke, A. The use of surveillance technology in residential facilities for people with dementia or intellectual disabilities: a study among nurses and support staff. American Journal of Nursing: 2014, 114(12), p. 28-37.

… in residential care facilities for people with dementia or intellectual disabilities is often promoted both as a solution to … in residential care facilities for people with dementia or intellectual disabilities, in order to explore the possible …

Publication

| Bekkema, N., Veer, A.J.E. de, Wagemans, A.M.A., Hertogh, C.M.P.M., Francke, A.L. Decision making about medical interventions in the end-of-life care of people with intellectual disabilities: a national survey of the considerations and beliefs of GPs, ID physicians and care staff. Patient Education and Counseling: 2014, 96(2), p. 204-209.

… interventions in the end-of-life care for people with intellectual disabilities (ID). Methods: A survey questionnaire covering … interventions in the end-of-life care for people with intellectual disabilities (ID). Methods: A survey …

Publication

| Veer, A.J.E. de, Bekkema, N., Hertogh, C.M.P.M., Francke, A.L. Shifts in care approaches and attitudes at the end of life of people with intellectual disabilities: from activating towards caring and letting go. European Journal of Palliative Care: 2015, p. 64. Abstract. 14th World Congress of the European Association for Palliative Care: Building Bridges. 8-10 mei 2015, Copenhagen.

… ABSTRACT: Background The focus in the care for people with intellectual disabilities (ID) is predominantly on self-reliance and … … Background The focus in the care for people with intellectual disabilities (ID) is predominantly on …

Publication

| Dörenberg, V., Veer, A. de, Francke, A., Embregts, P., Nieuwenhuizen, M. van, Frederiks, B. Using and reducing restrictive measures in adolescents with mild intellectual disabilities: a survey of staff members. Journal of Applied Research in Intellectual Disabilities: 2014, 27(4), p. 330. Abstract: 4e IASSIDD Europe Regional Congress, 14-17 Juli 2014 in Vienna.

… measures are widely used with adolescents with mild intellectual disabilities (ID). Restrictive measures are defined as all … measures are widely used with adolescents with mild intellectual disabilities (ID). Restrictive measures are …

Publication

| Bekkema, N., Veer, A.J.E. de, Hertogh, C.M.P.M., Francke, A.L. Respecting autonomy in the end-of-life care of people with intellectual disabilities: a qualitative multiple-case study. Journal of Intellectual Disability Research: 2014, 58(4), p. 368-380.

… for autonomy in the end-of-life care for people with intellectual disabilities (ID) and to discuss to what extent this … for autonomy in the end-of-life care for people with intellectual disabilities (ID) and to discuss to what extent …

Publication

| Bekkema, N., Veer, A.J.E. de, Albers, G., Hertogh, C.M.P.M., Onwuteaka-Philipsen, B.D., Francke, A.L. Training needs of nurses and social workers in the end-of-life care for people with intellectual disabilities: a national survey. Nurse Education Today: 2014, 34(4), p. 494-500.

… Nurses and social workers caring for people with intellectual disabilities are increasingly confronted with clients in need … Previous studies, however, suggest that professionals in intellectual disability care services lack knowledge and …

Publication

| Cardol, M., Meulenkamp, T.M. Ouder worden met een verstandelijke beperking, volgens mensen zelf en hun familie. NTZ: Nederlands Tijdschrift voor de Zorg aan mensen met verstandelijke beperkingen: 2013, 39(3), p. 196-208.

… experiences with ageing of people with mild or moderate intellectual disabilities and their close family members in an explorative … people with mild disability. Although 80% of people with intellectual disability aged 60 years and over reported a …

Publication

| Lehmann, B.A., Bos, A.E.R., Rijken, M., Cardol, M., Peters, G.J.Y., Kok, G., Curfs, L.M.G. Ageing with an intellectual disability: the impact of personal resources on well-being. Journal of Intellectual Disability Research: 2013, 57(11), p. 1068-1078.

… The population of ageing people with mild and moderate intellectual disabilities (ID) is growing rapidly. This study examines how … The population of ageing people with mild and moderate intellectual disabilities (ID) is growing rapidly. This study …

Publication

| Bekkema, N., Veer, A.J.E. de, Wagemans, A.M.A., Hertogh, C.M.P.M., Francke, A.L. To move or not to move? Considerations about transfers to other care settings in the end-of life care of people with intellectual disabilities. European Journal of Palliative Care: 2013, p. 104. Abstract. In abstractbook. EAPC 2013. 13th World Congress of the European Association for Palliative Care (EAPC). 30 may - 2 june 2013, Prague.

… Familiarity is also an important value for people with Intellectual Disabilities (ID). However, end-of-life care at home may not … Familiarity is also an important value for people with Intellectual Disabilities (ID). However, end-of-life care at …

Publication

| Dekkers, A., Raijmakers, N., Galesloot, C., Heide, A. van der. Liverpool Care Pathway: evaluation of a nationwide implementation program in the Netherlands. European Journal of Palliative Care: 2013, p. 172-173. Abstract. In abstractbook. EAPC 2013. 13th World Congress of the European Association for Palliative Care (EAPC). 30 may - 2 june 2013, Prague.

… in the Netherlands. … Palliatieve zorg … Thuiszorg … intellectual disabilities … palliative care … home care … decision …

Publication

| Cardol, M., Rijken, M., Schrojenstein Lantman-de Valk, H. van. Attitudes and dilemmas of caregivers supporting people with intellectual disabilities who have diabetes. Patient Education and Counseling: 2012, 87(3), p. 383-388.

… living arrangements support people with a mild or moderate intellectual disability (ID) who have diabetes. Methods: A … living arrangements support people with a mild or moderate intellectual disability (ID) who have diabetes. Methods: A … dilemmas of caregivers supporting people with intellectual disabilities who have diabetes. Patient Education and …

Publication

| Cardol, M. Community participation of people with intellectual disabilities is hindered by a lack of 'problem-ownership'. Journal of Intellectual Disability Research: 2012, 56(7-8), p. 807. Abstract. 14th World Congress of the International Association for the Scientific Study of Disabilities (IASSID), 9-14 juli 2012, Halifax.

… the International Association for the Scientific Study of Disabilities (IASSID), 9-14 juli 2012, Halifax. … Aim To … possibilities for community participation of people with intellectual disability (ID) from three perspectives: people … possibilities for community participation of people with intellectual disability (ID) from three perspectives: people …

Publication

| Lieshout, H. van. People with ID as interviewers and co-researchers: experiences and reflection. Journal of Intellectual Disability Research: 2012, 56(7-8), p. 722. Abstract. 14th World Congress of the International Association for the Scientific Study of Disabilities (IASSID), 9-14 juli 2012, Halifax.

… the International Association for the Scientific Study of Disabilities (IASSID), 9-14 juli 2012, Halifax. … Aim: To share the experience of working with people with intellectual disabilities (ID) as interviewers in a … … Aim: To share the experience of working with people with intellectual disabilities (ID) as interviewers in a …

Publication

| Verschuuren, M., Wahlbeck, K., Noonan, W. The Task Force on Major and Chronic Diseases. In: S. Giampaoli; H. van Oyen; W. Devillé; M. Verschuuren. Major and chronic diseases: report 2007. Luxemburg: European Commission, 2008. p. 5-17.

… Diseases. … morbidity … mortality … mental disorders … intellectual disabilities … diseases … methods … europe …

Publication

| Giampaoli, S., Oyen, H. van, Devillé, W., Verschuuren, M. Major and chronic diseases, report 2007. Luxemburg: European Commission, 2008. 305 p.

… … perinatal morbidity … musculoskeletal diseases … sti … intellectual disabilities … mouth diseases … oral health … methods … …

Publication

| Giampaoli, S., Oyen, H. van, Devillé, W., Verschuuren, M. Major and chronic diseases, report 2007. Executive summary. Luxemburg: European Commission, 2008. 34 p.

… … perinatal morbidity … musculoskeletal diseases … sti … intellectual disabilities … mouth diseases … oral health … methods … …

Publication

| Schrojenstein Lantman-de Valk, H.J.M. van, Wierik, M.J.M. te, Akker, M. van den, Wullink, M., Schellevis, F.G., Dinant, G.J., Metsemakers, J.F.M. Morbidity and health-care use of people with intellectual disabilities in general practice: first results of a survey in the Netherlands. Journal of Policy and Practice in Intellectual Disabilities: 2004, 1(2), p. 107-109.

… period to determine characteristics of patients with intellectual disabilities (ID). Sociodemographic characteristics differed … period to determine characteristics of patients with intellectual disabilities (ID). Sociodemographic …

Publication

| Speet, M., Delnoij, D.M., Sixma, H.J., Groenendijk, J.J. Differences in quality of care as perceived by persons with intellectual disabilities and their relatives. European Journal of Public Health: 2005, 15(suppl. 1), p. 19. Abstract. 13th Annual EUPHA Meeting "Promoting the public's health: reorienting health policies, linking health promotion and health care", Graz, 10-12 November 2005.

… of care. However, in the care delivered to persons with intellectual disabilities, because of problems with communication skills, … to explore differences between the views of persons with intellectual disabilities and their relatives about the …

Publication

| Straetmans, J.M.J.A.A., Schrojenstein Lantman-de Valk, H.M.J. van, Schellevis, F.G., Dinant, G.J. Health problems of people with intellectual disabilities: the impact for general practice. British Journal of General Practice: 2007, 57(534), p. 64-66.

… the health problems and prescriptions of people with intellectual disabilities registered with GPs. Within the Second Dutch … on the differences in health problems between people with intellectual disabilities and control persons (without …

Publication

| Putten, A.A.J. van der. Moving toward independence?: evaluation of the "Mobility Opportunities Via Education" curriculum with children with profound intellectual and multiple disabilities. Groningen: Rijksuniversiteit Groningen, 2005. 112 p. Proefschrift Rijksuniversiteit Groningen.

… Via Education" curriculum with children with profound intellectual and multiple disabilities. Groningen: Rijksuniversiteit Groningen, 2005. … Via Education" curriculum with children with profound intellectual and multiple disabilities. … influenza … …

News

Implementing evidence-based tools through participatory action research enhances palliative care for individuals with intellectual disabilities

… the quality of palliative care for individuals with intellectual disabilities, ten specialized care services implemented six … more: ' Improvement of palliative care for people with intellectual disabilities: a multi-site evaluation ' … …

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Start to talk early with people with intellectual disabilities about their preferences in palliative care

… care is in line with needs and wishes of people with intellectual disabilities (ID), it is of great importance to talk early … in the programme. … Start to talk early with people with intellectual disabilities about their preferences in …

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Palliative care at home preferred for people with intellectual disabilities

… would prefer to provide palliative care to people with intellectual disabilities in their home environment. This is possible in … (NIVEL) have published these findings in the Journal of Intellectual Disability Research . Virtually all health …

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Intellectual disability services: a need for extra training in end-of-life care

… Although professionals caring for people with intellectual disabilities feel that their team offers good end-of-life … also means that an increasing number of people with intellectual disabilities need end-of-life care. Many …

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Autonomy in end-of-life care for people with intellectual disabilities

… interference by others. However, for people with intellectual disabilities who are in the final phase of life, other people … by researchers from NIVEL and VUmc in the Journal of Intellectual Disability Research .   During the end-of-life …
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Our national Databases and Panels

… our society.   Nivel Panel Living Together - people with intellectual disabilities and family members With the Nivel Panel Living … on the care and living situation of people with an intellectual disability and their relatives, from their …
General

Nivel Panel Living Together - people with intellectual disabilities and family members

… on the care and living situation of people with an intellectual disability and relatives from their perspective, … of: approximately 500 people with a mild or moderate intellectual disability approximately 350 relatives of people … Methodology The panel members with intellectual disabilities are invited once every two years for an oral …